Navigating Life with Ulcerative Colitis E43

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Written by #WWR

March 13, 2023

Join hosts Sareta and Dee as they chat with Lesley-Anne O’Brien, musician and owner of Onslaught Music Group. Lesley-Anne is passionate about making music accessible and has made her mark in the industry by establishing a music label and services company.

She also manages the independent punk and hardcore label Lockjaw Records, founded on friendship, social responsibility and an appreciation of punk rock.

Lesley shares her experience living with Ulcerative Colitis, including the symptoms, diagnosis process, and a revolutionary treatment option, Faecal Microbiota Transplant.

We learn more about her career and how she manages her long-term condition.

Sareta and Dee also ask Lesley about the impact of Ulcerative Colitis on her life and work, lifestyle changes to consider, stress management techniques, and advice for those newly diagnosed.

Join us for this inspiring and informative discussion!

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Managing Ulcerative Colitis: Understanding the Causes, Symptoms, and Dietary Changes

Ulcerative Colitis (UC) is an Inflammatory Bowel Disease (IBD) affecting the colon (large intestine). It is an autoimmune disorder, meaning that your body’s immune system attacks your intestine’s healthy cells, leading to inflammation, ulcers and other digestive issues.

The exact cause of Ulcerative Colitis is unknown, but researchers believe genetic and environmental factors, such as diet, stress, and certain medications, are involved.

Living with Ulcerative Colitis can be challenging and disruptive to your daily life. Depending on the severity of your condition, you may experience symptoms ranging from mild to severe.

Symptoms

Common symptoms of Ulcerative Colitis include abdominal pain and cramping, diarrhoea (sometimes with blood), weight loss, fatigue, and anaemia. Less common symptoms may include fever and joint pain.

Symptoms can make focusing on daily tasks and activities like work, school, or social engagements difficult. Additionally, UC can cause feelings of embarrassment and anxiety, which can further interfere with day-to-day activities.

UC can also interfere with your sleep, as flares of the condition can make it difficult to find a comfortable position and lead to insomnia. Creating a good sleep routine is essential to maintain healthy sleep habits.

Diet

When it comes to diet, those with Ulcerative Colitis may benefit from avoiding foods that can irritate the digestive system, such as dairy, processed foods and fried or fatty foods. Eating a diet rich in fibre, fruits, and vegetables may also help reduce symptoms; however, fibre affects individuals differently. Additionally, avoiding alcohol and caffeine may also be beneficial.

Former Blogger, The Imperfect Motha, realised that she could be a better mother, wife and friend when she cared for her own needs first. Read on to learn more about her journey of balancing Crohn’s Disease with Motherhood.

Ulcerative Colitis is similar to another type of IBD, Crohn’s Disease. Both conditions involve inflammation of the intestines and can cause abdominal pain, diarrhoea, and weight loss. The main difference between the two is that Crohn’s Disease can affect any part of the digestive system, while Ulcerative Colitis is limited to the colon.

Both conditions can be stressful and lead to depression and anxiety, so it is vital to seek help if you are struggling. Remember that you’re not alone! Many treatments can help you manage your symptoms and live a healthy and fulfilling life.

Crohn’s & Colitis UK is a national charity that provides support and information to those affected by Inflammatory Bowel Disease, including Ulcerative Colitis. The charity offers various services, including local support groups, an online community, and the latest news and research on the condition.

UC Support

The UK has a range of support groups for those suffering from Ulcerative Colitis. These groups are designed to provide support, advice and understanding for those with the condition.

Colitis and Me Forum is an online community for those affected by Ulcerative Colitis. The group is open to anyone affected by UC and is a place to connect with other sufferers and share stories.

Ulcerative Colitis UK Support Group  is a Facebook group dedicated to supporting and advising those with UC. The group offers a range of resources, including links to research, advice and support from experienced members.

Finally, Colon Club UK  is a charity dedicated to raising awareness of UC and providing support and advice to those affected by the condition. The charity offers information, resources, and a range of support groups across the UK.

These are just some UK support groups available for those with Ulcerative Colitis. For more information, don’t hesitate to contact your GP.

 

Feel free to donate as little or as much as you want, as any amount is very much appreciated. Thank you for helping me sort my sh*t out!” – Lesley

After much hard work and dedication, Lesley has been making significant progress in remission from her Ulcerative Colitis. But when she hit a wall and needed a Microbiome Test & Consultation to learn more and help her heal, she found it wasn’t covered by the NHS or health insurance. This test was her last hope but came with a hefty price tag of £750. Without it, she risks serious issues like ruptured bowel and bowel cancer.

Lesley had one more option – a year of immunosuppressant drugs – but the potential long-term side effects and the risks of becoming more vulnerable to Covid made this a difficult decision.

So Lesley asked for help to cover the cost of the test, and she’s been overwhelmed by the response! Not only did she raise the full £750, but the funds have kept coming in, with the excess being donated to Crohn’s and Colitis UK.

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FIND OUT MORE

Lesley-Anne O’Brien is an outstanding talent – a multifaceted musician and businesswoman. She is the proud owner of Onslaught Music Group, Lockjaw Records manager, and Midwich Cuckoos’s guitarist. In addition, she is a passionate advocate for Ulcerative Colitis.

You can be part of an incredible story, help support Lesley’s fund for Crohn’s and Colitis UK, and explore her musical projects!

Follow the links below to find out how.

Web: Lesley’s Go Fund Me
Web: OnslaughtMusic.com
IG: @OnslaughtMusic
Band: MidwichCuckoos.com
Web: LockjawRecords.co.uk

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